ALS Workgroup Report

Amyotrophic Lateral Sclerosis (ALS) is a progressive, incurable neuromuscular disease that affects about 4,600 newly diagnosed people in the United States each year, who live an average of three to five years after diagnosis. The ALS Workgroup worked to identify key factors necessary to improve palliative care for ALS patients and their families from May 2000 - August 2002. Chaired by Hiroshi Mitsumoto, MD, at the Columbia University Neurologic Institute in New York and managed by the ALS Association (www.alsa.org) in California, this workgroup consisted of 22 members including neurologists, nurses, palliative care specialists and social workers.

13:08:00 September 1, 2005, Thursday (PDT) Source: Growth House News

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