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Description: The latest news on quality improvement for care for the dying.
Last Update: 23:07:18 03/05/2006
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Additional Info
First Fetched: 00:16:39 01/31/2004
Last Updated: 23:07:18 03/05/2006
Headlines
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Growth House Radio's Christmas Channel offers family-friendly holiday music as a seasonal supplement to our audio education service.
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Download a complete curriculum for end-of-life care for free, courtesy of Stanford University.
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Find a treat on the new Halloween Channel of Growth House Radio. This channel is a family-friendly seasonal supplement to our audio education service.
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Joanne Lynn lays out an articulate and non-nonsense manifesto for reforming health care for the last years of life in her latest book. Dr. Lynn, a top expert in the field, pulls no punches in her description of what works -- and what doesn't.
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Cancer survivor David Bailey has released a two-CD anthology of songs that bring messages of hope to those affected by life-limiting illnesses.
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This practical reference book by noted palliative care specialists gives clear guidelines on how to provide high-quality palliative care in home settings. The authors affirm that excellent palliative care can be delivered in the home, even if the patient is eventually admitted to a hospital or palliative care unit. Surveys consistently show that most people would prefer to be cared for at home rather than in an acute care facility such as a hospital. Edited by Derek Doyle, David Jeffrey, and Kenneth Calman.
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Enrollment is now open for your institution to participate in a national quality improvement effort for end-of-life care directed by Joanne Lynn. There is still time to join prior to the national Learning Session on October 21-22, 2004. For more information call Ekta Chaudhry, Director of the Collaborative, at 202-895-2634, or email echaudhry@thewashingtonhome.org.
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September 30 - October 2, 2004, Washington DC. Gives insights into leadership and practical solutions to help you manage end-of-life care.
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The hospice medical director faces numerous challenges. This AAHPM course gives you tools to fulfill your role within the interdisciplinary team. September 2-4, 2004, San Diego.
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Joliet Hospice has released a CD of music specifically designed for support of hospice patients.
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On September 17, 2004, Hospice of the Western Reserve will present their Hospice Institute Fall Conference, a day event that focuses on end-of-life care and surrounding issues. Continuing professional contact hours offered. RSVP to Joanne Sheldon at (216) 383-3733 by September 10, 2004.
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This report, written by the Promoting Excellence in End-of-Life Care Peer Workgroup on Palliative and End-of-Life Care in HIV/AIDS, an interdisciplinary group of clinicians and researchers, provides an assessment of unmet needs of HIV patients and their families with respect to comfort, quality of life and caregiver support, and calls for the re-integration of palliative care into the continuum of HIV care.
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Evidence-based practice parameters in amyotrophic lateral sclerosis (ALS) provide clear management direction on caring for patients during disease progression. However, management direction is also needed specifically for end-of-life care for patients with ALS. Little evidence is available in the published literature identifying optimal management approaches for the dying patient with ALS. Therapeutic direction has been adapted from pain management and other disease states, such as cancer. The Promoting Excellence program office recognized ALS as a disease that requires special attention at the end of life. Working with The ALS Association (ALSA), an ALS Peer Workgroup was established with the charge of identifying the current state of end-of-life care for ALS patients and establishing recommendations on how to improve the end of life for patients and their families. The full report is available online.
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The New York University School School of Social Work Division of Lifelong Learning and Professional Development has announced a new program leading to a Post Master's Certificate in Palliative and End of Life Care. The program will begin in September 2004. This program is for social workers with a MSW and a minimum of one year's experience in palliative and end of life care. For more information about the program please contact Michelle Ingrassia via email at mji1@nyu.edu
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By Mary Jo Bennett. This book explores death from the perspective of a hospice volunteer, recounting stories based on experiences with patients, friends, and family members. This insightful and tender book provides a realistic introduction to what hospice volunteers actually do.
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In the United States, the National Consensus Project for Quality Palliative Care (NCP) has completed its work on the Clinical Practice Guidelines for Quality Palliative Care. The Guidelines are now available for download electronically on the NCP Web site. These guidelines were developed by the National Consensus Project for Quality Palliative Care (NCP), a consortium of leading palliative care organizations. The guidelines provide detailed guidance on appropriate, evidence-based means to address eight key domains: Structure and Process of Care; Physical; Psychological and Psychiatric; Social; Spiritual; Religious and Existential; Cultural; The Imminently Dying Patient: and Ethics and Law. The new guidelines will assist the rapidly increasing number of palliative care programs established in hospitals, nursing homes, hospices and health systems deliver high-quality, palliative care for seriously ill patients and their families.
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The California Coalition for Compassionate Care will sponsor a one-day program addressing end-of-life issues, in conjunction with the American Society on Aging West Coast Summer Series on Aging, June 8, 2004, in San Francisco. To register, contact ASA at (800) 537-9728.
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Fellowship applications will be accepted to June 1, 2004, extending the deadline from May 1st. Established by The Mayday Fund, the Mayday Pain & Society Fellowship trains physicians, nurses, social workers, scientists, and legal scholars in the pain management community to become thought leaders and advocates for change in the management of pain in the United States and Canada.
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In hospice care and in many nursing homes, the process of thinking back on your life and talking about it with another person is called life review. Life review is an important part of bringing one's life to a close. A new section of the Growth House web site compiles resources for this type of supportive intervention.
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New for 2004! Growth House now offers an online service that enables organizations to develop education materials and then project those education materials across the Internet in XML form. Designed for use by non-technical people, the web-based XML content management system lets you enter your educational materials or news releases using simple forms.
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Ira Byock's new book shows how four simple phrases -- "Please forgive me," "I forgive you," "Thank you," and "I love you" -- carry enormous power.
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The Washington Home Center for Palliative Care Studies is partnering with Growth House to distribute patient-education guides to living with Advanced Congestive Heart Failure (CHF) or Advanced Chronic Obstructive Pulmonary Disease (COPD) via the Internet. These patient education materials are available in both PDF and HTML format for web-based learning. The guides are one of our most popular public education features, with over 10,000 downloads of the PDF versions in March alone.
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Founded in 1994, Growth House is celebrating its tenth year serving those faced with life-threatening illness. The mission of Growth House is to improve the quality of compassionate care for people who are dying through public education and global professional networking. With over 4,000 pages of educational content from more than thirty partner organizations, Growth House offers the Internet's leading portal for information about care at the end of life.
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This book by David Aldridge (Editor) covers issues specific to use of music in hospice and palliative care settings.
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May 6-8, 2004, in Minneapolis, MN. Registration deadlline April 19, 2004. Leading experts provide practical and comprehensive information on how to plan, organize, fund and manage a successful palliative care program. For details call Lisa Morgan at 212-201-2675 or e-mail lisa.morgan@mssm.edu.
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An innovative online caregiver support service enables family members to manage critical information about their loved ones from any place in the world that has access to the Internet. The Internet-based system can store healthcare information, medications currently prescribed, a medical history, listing of physicians, insurance coverage, Living Will and other documents, and even financial data and funeral planning requests. Information can be shared with care professionals and other family members. Based on professional case management software, the new web-based service is designed for ease of use by non-specialists. Could be a good option for information sharing by family members who live far apart.
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30,000 people in the United States are living with Huntington's Disease (HD), an inherited neurodegenerative disorder with onset usually between 30 to 50 years of age, and a disease course spanning two or more decades to death. It involves progressive motor, cognitive and behavioral symptoms from onset until death. No cure exists. The disease, which is often misinterpreted, is underreported and understudied. This report represents the HD Peer Workgroup's findings. Its Recommendations to the Field issue a call to action to improve care and quality of life for people with HD and their families. These changes include providing medication benefits and in-home therapies that maintain function and provide palliative care for people with HD to the extent possible and desired in their own home, and providing support and respite for caregivers. The full report is available online.
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Promoting Excellence in End-of-Life Care, a national program of The Robert Wood Johnson Foundation, formed the Cost Accounting Peer Workgroup in 2000. Now you can read the full report from this diverse group of economists, clinicians, health policy researchers and program managers who have identified accurate and meaningful methods of measuring end-of-life health care resource use and costs. Workgroup members identified specific guidelines, cost methodologies and measurement tools for analyzing costs of end-of-life care, and developed the recommendations put forth in this report for resolving problems and issues in health care cost accounting through the end of life. Full report is available online.
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The 21st International Conference on Death and Bereavement will take place in Eilat, Israel, March 23-25, 2004. The conference is sponsored by UNESCO amongst other organizations. For more information send email to seminars@isas.co.il or visit the web site at www.isas.co.il/bereavement2004.
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You can download a free discussion guide for Bill Colby's book on the Nancy Cruzan case, "Long Goodbye." The discussion guide was developed for book clubs and classrooms that are using the book to help raise awareness about the importance of advance care planning. The free guide includes discussion questions on the Nancy Cruzan case, plus questions designed to stimulate thinking about your own wishes. There's also a list of suggested resources for further study. Two audio interviews with author Bill Colby are also available in streaming media format.
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